I owe you all some more tributes to James Durbin, but for now I am showing you a video of my little Stink and his sister, Pip. Stink is doing so well these days on his diet that I figure all you crazy newly diagnosed mamas and papas might want some humor and a lift.

More to come!
 
 
I just can't say enough about how much I love James Durbin. His voice... he's energy... his soul. Yah, he has TS, so he's close to my heart. But this guy would kill me anyway.

Fox did a story on how he inspires kids with TS 
here.

He also inspires mamas. I live in Los Angeles, so I did what any good mama of a TS kid would do: I invited him over for dinner!

Will he come? Unlikely. But James, if you're reading this, know that there's a cul de sac and a warm meal waiting for you any time you need some family comfort! (And I won't even blog about it if you need privacy! LOL. But I will post all your videos... because you rock!)

Here's what made me first fall in love with this earth shattering talent!

More to come!


 
 
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I live in Los Angeles, and as far as I can tell, there is no official Tourette Syndrome Association chapter meeting place.

No problem - I just created my own personal group from different people I've met on various forums and through this blog you are reading now. I highly highly HIGHLY encourage you all to start leaving comments and get to know each other so that you, too, can have a support system of like-minded mamas and papas.

I cannot provide that support group for you. I have my own and we're at full capacity. You need to create one for yourself. 

Be proactive! You can do it! (I will always write this public blog, though, as long as it continues to help.)

For some of you, you need support for dealing with minor tics (That's the group I have.)

For some of you, you need support for dealing with more extreme TS.

For others, ADHD is more of an issue for you and your child, or perhaps OCD.

Whatever your need is, I encourage you all to not sit around and feel sorry for yourself. Be proactive and get moving! You don't have a group, form one! Leave a comment here and beg people to come back and leave one for you! Little by little you can exchange emails with one another and help each other out!

Meanwhile, I'd like to nudge you to click on 
Tourette Association of New Jersey link I've provided and find out a bit more about what they are up to. They have been very instrumental in my journey with their seminars, newsletters and overall educational goodness!
 
I've cut and pasted, word for word, information below about their next FREE webinar. While donations are always accepted (see red link above) none are necessary to hear a talk.

* Note: I received no payment for this advertising.

Until next time, hug that little ticker today! A kid who tics and has confidence rocks over kids who don't tic and are boring!
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TOURETTE SYNDROME ASSOCIATION OF NEW JERSEY presents:

The Impact on Marriage and Family in Raising a Child with Neurological Issues

Join us for a Webinar on March 23

Space is limited.
Reserve your Webinar seat now at:
https://www1.gotomeeting.com/register/147088912

Families of children with special needs face common challenges. Parents often report feelings of distance between each other when a child requires unexpected and unusual attention. Siblings, regardless of birth order, can struggle with being the more average child and not receiving the same type of attention as the child with special needs receives. This can lead siblings to become withdrawn or, more often than not, to establish an identity for themselves by acting out to achieve “secondary gains” (attention that is not really intended by the parents). When siblings get attention by doing the “wrong” thing or behaving unacceptably, they’re still receiving time and interaction with their parents. (Attention, positive or negative, is still attention). This can cause quite a strain on the parents as individuals and as a married couple.

Gayle Forman, LCSW is a family therapist with a private practice in Denville, NJ. She has 21 years of experience as a psychotherapist; eight of which she worked exclusively with children and families at St. Clare’s Hospital (Denville).  

Currently Ms. Forman works with patients that have dissociative disorders, Tourette Syndrome and has experience with children diagnosed with a variety of neurological and  emotional difficulties. She also provides marriage counseling.

She is passionate about educating parents in ways to advocate within schools to get necessary accommodations for their children. Ms. Forman runs workshops for faculty and students at schools about Tourette Syndrome.

This will be a  30 minute presentation with a 30 minute question and answer session afterward.

Professional Development credits will be offered upon verifying attendance of the webinar and completion of the exit survey. We will mail them to you the week after the webinar.

Title:

The Impact on Marriage and Family in Raising a Child with Neurological Issues

Date:

Wednesday, March 23, 2011

Time:

7:30 PM - 8:30 PM EDT

After registering you will receive a confirmation email containing information about joining the Webinar.

System Requirements
PC-based attendees
Required: Windows® 7, Vista, XP or 2003 Server

Macintosh®-based attendees
Required: Mac OS® X 10.4.11 (Tiger®) or newer







 
 
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Okay, so this syndrome is nuts. I mean nuts. We went through one of the worst tic periods ever about a month ago - right after I did the plug for the vitamins in my previous post. I was starting to become unglued, for while I know there is no magic cure, it was hard to watch him roll his eyes and do this insane head bob I can only describe as "The Woodpecker." 

To make matters worse, we really saw a drop in his focus. 

As many of you know. TS isn't just about tics. It's often combined with either OCD or ADHD. We were seeing the ADHD (inattentive) big time.

What to do? Drugs? NOOOOOO! (Though I would if I had to, but my mama brain wasn't there yet.)

I, once again, braced for the long haul. 

First thing I did was not take him off the vitamins, because in my heart, I knew they weren't the cause. He had no vocals, and I'm convinced those Progressives are the key to helping out there due to the high magnesium content balanced with the calcium.

It did, however, give my husband the push to get back on the gluten free train. This time, instead of arguing with me about it, Rex decided to try it for himself. 

IT ROCKED HIS WORLD. "I have never felt so good and so focused in my entire life" he would say over and over. "I can feel my brain unsqueeze... I am never going back!"

Part of what helped get my husband to even try going gluten free was a book that was recommended by one of Stink's doc's by Dr. Jay Gordon called, "The ADD/ADHD Cure: The Natural Way to Treat Hyperactivity and Refocus Your Child." Its common sense appealed to Rex's logic. (Not that me shrieking like a harpie and obsessing emotionally over Stink's tics and fog brain weren't completely appealing to my dear hubby.)

I read this book little by little over the course of a month to Rex (and I gave him some extra incentive that money can't buy... wink wink...) 

Many of you might say that your child doesn't have ADHD and honestly, until Stink was in second grade, it wasn't that obvious to me either. But even if Stink didn't have ADHD (and he has no diagnosis yet) the book promotes the same kind of eating that any Natural Cure TS book promotes. There are 4 simple steps:

1. No sugar
2. No preservatives, dyes or chemicals
3. No gluten
4. No dairy

We just started the dairy elimination this month.

Good bye Mister Woodpecker! Goodbye eye roll!

Now, to be fair, part of Stink's increase in tics was that, 2 weeks later, he had a bad cold. Clearly his immune system had been down for a few weeks bringing out the tics. I need to remember that! Sickness brings on tics!

But honestly, everything in this book points to what our wonderful naturopath has been saying for years: No gluten, no dairy, no junk.

I highly recommend everyone give this a go. I'll do another post on how to detox simply and make it a lifestyle change all can live with. As Dr. Jay Gordon says, this is not about diet restrictions - it's about an adventure in health.

Four years into this game, I'm not expecting a cure-all. Stink's tics will come back. I know that. He minorly tics now. But it's so livable. 

Stay tuned for some interviews with some inspiring parents I've met who swear that medication did not work for their kids. Finding the triggers and maintaining a healthy diet with supplements did it. 

I'm here for you all! Please post your experiences so you can build a community through these threads!

Today's take-aways



* Diet can make a difference
* Ilness can bring out tics. Just relax. They will pass.
* Tics come and go, so be patient
* There are tons of success stories out there
 and as always...

A confident kid who tics outweighs a boring kid who doesn't, so hug that ticker today!