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Use this Website to Form Support Groups Like I Did! 08/06/2009
23 Comments
 
Like many of your children where tics suddenly presented themselves in a rushing blast of intensity, I've received an insane rush of emails this month from moms who are fearing the worst.

I remember those days of feeling so alone. It seemed everyone knew someone who had a daughter who had a friend with TS or tics, but NO ONE KNEW ANYONE PERSONALLY. Don't even get me started on the whole neurologist nightmare.

If you're one of those parents new to this journey, I have 3 things to say:

1. Don't freak out. Your child most likely is just very sensitive and is having some very common childhood tics. The right diet, exercise, and supplements can really help.

2. I am going to really try to post here once a week. (I know I've said that before, but with my kids starting school soon, this is more feasible.) I'll start with Thursdays - Tic/Tourette Thursday. It will be a nice jumpstart to get conversations started on a public forum.

3. For those who want more private time, I highly recommend you leave an email here so that other moms can contact you. Then you can form your own personal support group offline, as well as check into this website here and there for ideas, answers, etc.

As a side note, I am not going to join anyone's Facebook only because I keep that for my writing, not my kids. I hope no one is offended by that.

As always, I will leave you with this: A confident child who tics rocks over a "perfect" child who is all messed up on the inside.

Okay, that was 3 pieces of advice. Don't get all ticked off on me, now.

NAMES OF PEOPLE WHO WANT TO JOIN TWITCH AND BITCH 2 IN THE COMMENTS PLEASE!
23 Comments
 

    TICKED OFF: TOURETTES TALK

    "When You Can't Fix the Tics, Fix Yourself"

    Consider this is your 12-Step Tourettes Support Group where we will encourage each other to:

    1. Accept the tics we cannot change

    2. Change the tics we can

    3. And have the wisdom to know the difference.

    ABOUT ME
    My son, Stink, was diagnosed with mild Tourettes when he was 4. I was terrifed he would curse, shriek, scream and hump busses.

    Quite the opposite, he is highly creative, social and thriving.

    I keep his tics at a minimum through a gluten free/caesin free diet.

    While I haven't eliminated his tics altogether, I'm eliminating fear through a good dose of humor and acceptance.

    I hope you'll join me so we can support each other on this crazy journey. Welcome to Ticked Off.

    Picture
    I write weekly for the New Jersey Center for Tourette Syndrome blog. Come visit me, and other awesome parents, for some daily support!

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