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It's Just My Tic! 07/15/2010
2 Comments
 
Keeping this short to update you all on Stink's all-you-can-eat-Tourettes diet... which is very very different than how he normally eats. (see post below.)

Let's just say that we're seeing a difference - and not in a good way. He has been vocally doing that "huh" and can't really get through a sentence without some sort of clear or "mmm" or something.

It's not crazy loud, but just non-stop. He's also been waaaay more keyed up. My husband has even noticed it. "Kind of like a motor" he said. (Ya think?)

We're in our cabin this week. A few neighbor kids stopped by to play pool. Both of them, at one point, looked at him, and said, "What's up with those noises? Do you need to cough or get a drink?"

Stink just looked at them totally non-chalant and said, "Oh, that's just my tic!"

Clearly these kids did not know what a tic was, so when he did it again (ten seconds later) they said, "Is that your tic?"

He nodded.

They went, "Hmmm" and that was it.

No big deal! Like, duhhhhhhh, it's just Tourettes.

So, while I am going CRAZY until the end of this month when we can put this kid back on a diet (after some new blood work) for him, it's just a tic.

That'll teach me.







 


Comments

Jackie
07/18/2010 20:08

I've enjoyed reading your entries. My daughter, who turned seven last week, shares a very similar story to your son. Mostly minor tics, but usually a small vocal tic or some sort. Sometimes it's a cough or a hum, but it's always something. I'm always afraid the small vocals will turn into the big vocals. Anyway, many of the triggers you mention also occur with my daughter, and something else I've noticed now that it's been going on for four years, is that she has them worse for about a month or so during the summer and also during growth spurts. After a long stint of tics, her clothes will have grown smaller, especially shoes. She also has the hyperactivity during her worst bouts. It's almost like she's out of control. Sitting still is almost impossible. I'm pretty laid back and the bouncing energy is more than I can handle at times.

We went to a birthday party yesterday and there was this gorgeous butterfly cake, covered in all colors of the food-dye rainbow. The cake gets cut and it's tie-dyed on the inside. I looked around for Jerry Garcia to pop out somewhere, but remembered he had long passed. Anyway... it's been pretty crazy since that piece of cake. Its the only time I let her have cake like that, at birthdays. I should have told her no, but it's hard. Ugh. She knows, though, that crazy colors will do it to her, and she makes the choice to suffer later. No difference with me.. I know the cake will add the pounds, but I surrender to it every time.

Good luck to you and your family! I hope we all find some more peaceful days. :)

Jackie

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Daria link
07/20/2010 12:39

Your determination and persistence inspires me.

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    TICKED OFF: TOURETTES TALK

    "When You Can't Fix the Tics, Fix Yourself"

    Consider this is your 12-Step Tourettes Support Group where we will encourage each other to:

    1. Accept the tics we cannot change

    2. Change the tics we can

    3. And have the wisdom to know the difference.

    ABOUT ME
    My son, Stink, was diagnosed with mild Tourettes when he was 4. I was terrifed he would curse, shriek, scream and hump busses.

    Quite the opposite, he is highly creative, social and thriving.

    I keep his tics at a minimum through a gluten free/caesin free diet.

    While I haven't eliminated his tics altogether, I'm eliminating fear through a good dose of humor and acceptance.

    I hope you'll join me so we can support each other on this crazy journey. Welcome to Ticked Off.

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    I write weekly for the New Jersey Center for Tourette Syndrome blog. Come visit me, and other awesome parents, for some daily support!

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